장애인의 가족 내 주변화 경험에 대한 연구

초록

Previous literature on the families of people with disabilities has focused on the problems of social exclusion, discrimination, and care that they experience. As the daily interactions between disabled and non-disabled family members are considered a private sphere of life, aspects of conflict and adaptation within the family have not received sufficient social and academic attention. This study aims to analyze the experiences and perceptions of discrimination of people with disabilities in their relationships with their family members in their daily lives. Families of people with disabilities help and support the disabled person. However, when they internalize meritocratic values, discriminatory attitudes and behaviors toward people with disabilities sometimes appear at the same time. This is because the family of a disabled person is the group that experiences disability most closely and has a rich understanding of disability but is also influenced by the social structure and culture that operates around non-disabled people. Within this, people with disabilities experience subtle discrimination and marginalization in their daily relationships with non-disabled family members. This study conducted a thematic analysis through in-depth interviews with nine physically and visually impaired people. The analysis revealed that disabled people are not recognized by their families as capable of leading the same lives as non-disabled people, such as marriage, higher education, dating, and independence, and are positioned as incompetent and dependent beings who need to be helped by their families. In addition, disabled people are constantly excluded from decisions that affect them or their families and are sometimes refused permission to go out with their families, who are ashamed of their disabilities. These findings show that when the family of a disabled person internalizes non-disability-centered values, the disabled person is marginalized as a 'disabled' person rather than as an equal family member. By showing that when disabled people try to participate in society, marginalization occurs in everyday life, even among non-disabled family members to whom they are most closely related, it shows how the social exclusion experienced by disabled people is manifested in even the most basic and everyday aspects of disability discrimination.

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